To honor the 30th Anniversary of the Americans with Disabilities Act (ADA), In The Know is asking young people with disabilities about growing up with the law, and how it’s impacted their lives.
Annie Segarra spent decades without a diagnosis.
The 30-year-old, who was born with Ehlers-Danlos syndrome (EDS) — a genetic tissue disorder that can affect joints, skin and several internal organs — didn’t know she had a disability until she was well into her 20s.
In school, she struggled in P.E. class and never knew why. She couldn’t run as fast as the other kids. Sometimes, she’d pass out after showering. When she exercised, her face got extremely red.
It took years for her to realize that none of this was “normal.”
“All these were signs, if anyone had paid attention, that there was something wrong with my health,” Segarra told In The Know. “They would dismiss it